Resources
Funding shortfalls delaying needed services
it is Information regarding current research for chronic fatigue syndrome, fibromyalgia, long-Covid, Gulf War syndrome, and other related conditions
Covid long-haulers face grueling fights for disability benefits
Long-haulers syndrome and disability benefits article
Getting disability for Lupus
Covid Longhaul Syndrome
- Whitehouse Designates Long-Covid As a Disability
- Long Covid
- Researchers are closing in on long covid | The Economist
- Covid Long Holler Alliance
Webinar
- Covid-19 Longhauler Webinar:http://bit.ly/Longhaulerswebinar
- 2020 EmPOWER M.E. Roundtable: How to Navigate Disability Insurance with ME/CFS
- 03.21.17 – SSDI and SSI – Presented for MS Patients in Los Angeles
Articles
- How to Provide for a Disabled Child Receiving SSI
- $3.9M Grant Awarded to Study Effects of Low-glycemic Diet
- Senate bill seeks to update Supplemental Security Income asset rules
- Article on Fibromyalgia and mood disorders:
Lady Gaga, Fame, and Fibromyalgia
Pain management expert, Don L. Goldenberg, MD, provides a professional assessment of this pop icon’s battle with mood disturbances, sleep difficulties, and chronic widespread pain from fibromyalgia, a condition affecting some six million Americans.
By Don L. Goldenberg, MD - Supplemental Security Income: Let’s Strengthen It and Make History! | Common Dreams
- Researchers are closing in on long covid | The Economist
- Will Biden remove Trump-appointed SSA leadership, making applications easier?
It is no secret that Social Security application denials have increased under Trump-appointed leadership. Here is an interesting op-ed from the Baltimore Sun, discussing the need for new leadership.
Union reps: Trump-appointed SSA leadership ‘must go’ | COMMENTARY - Chronic Fatigue Syndrome (ME/CFS) and Covid-19: https://www.healthrising.org/blog/2021/01/22/long-covid-link-chronic-fatigue-syndrome/?fbclid=IwAR0-qRo–jsyKbFFkno5DaXVfxg01OSFco-QjvyD5zviF8mJRaB7MwmhevI
- Useful articles in the journal Work: https://content.iospress.com/journals/work/66/2
Helpful links:
Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia And Related Conditions:
- Health Rising – http://www.HealthRising.org
- Bateman Horne Center – http://www.Batemanhornecenter.org
- Workwell Foundation – Cardiopulmonary Exercise Testing (CPET) – http://www.Workwellfoundation.org
Useful Social Security Related Links
- Social Security Q and A
- Social Security Administration Official Web Site – Home Page of the Social Security Administration
- Nosscr – National Organization of Social Security Claimants Representatives
- Social Security Administration Earnings Record – Direct Link to the Government Link where you can on line request that a copy of your earnings record be sent to you.
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